A Resource Guide for Children and Adults With Developmental Disabilities Living in King County

Publications

A - B - C - D - E - F - G - H -  I  - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

A

Annie E. Casey Foundation
701 St. Paul St. 
Baltimore, MD 21202
Phone:  (410) 547-6600
Fax: (410) 547-6624
Web:  http://www.aecf.org
Info:  National children's advocacy organization.  The primary mission of the Foundation is to foster public policies, human service reforms, and community supports that more effectively meet the needs of today's vulnerable children and families.  Web site includes Kids Count online census database; publications and other resources.  Publications available on-line include:  AdvoCase (foundation magazine), Casey Connects (foundation newsletter); and other publications covering topics such as managed care, human services workforce development, community/neighborhood development, economic development/welfare reform, education, fatherhood, family to family support, foster care, youth transition, government reform and public policy, health and teen pregnancy, juvenile justice, research and evaluation, and other topics.

The Archives and Library on Disability at the University of Colorado
The Coleman Institute for Cognitive Disabilities 
University of Colorado System
4001 Discovery Drive, Suite 210 (586 Sys)
Boulder, Colorado 80309 
Phone: (303) 735-3128 
Fax: (303) 735-5643 
Info:  The Archives and Library on Disability grew out of the personal collection of Professor David Braddock who holds the Coleman-Turner Chair in Cognitive Disability in the Department of Psychiatry at the University of Colorado School of Medicine and serves as Executive Director of the Coleman Institute for Cognitive Disabilities. The purpose of the library is to acquire, catalogue, and preserve print and non-print materials on the history of disability. The collection presently contains over 20,000 books, monographs, journals, and non-print materials in three areas of study: (a) Mental Disability; (b) Physical and Sensory Disability; and (c) General Disability Studies. 

Association of University Centers on Disabilities (AUCD) 
1010 Wayne Avenue, Suite 920
Silver Spring, MD 20910
Pone:  (301) 588-8252
FAX:  (301) 588-2842
E-mail:  kmusheno@aucd.org
Web:  http://www.aucd.org
Info: A network of interdisciplinary Centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities.  The Association of University Centers on Disabilities (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) is a 501(c) non-profit organization that promotes and supports the national network of university centers on disabilities, which includes University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD), Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs and Developmental Disabilities Research Centers (DDRC).

B

Because We Care:  A Guide for People Who Care
Administration on Aging
330 Independence Avenue, SW
Washington, DC 20201
Phone:  (202) 401-4541
Fax:  (202) 260-1012
E-mail:  aoainfo@aoa.gov
Web:  http://www.aoa.gov/wecare/default.htm
Info:  An online resource guide for the growing number of Americans who are caring for an older family member, adult child with disabilities, or older friend.  This Guide provides information and a range of suggestions to make caregiving easier and more successful--whether you are the caregiver or the person who ensures that your family member or friend receives the best possible care from others.  Since this Guide contains many links to outside references, the online html version is recommended; for better printing, a PDF version is available for download, or you may request a written copy from AOA..

Brookes Publishing - Family Resources
Paul H. Brookes Publishing Co. Inc.
P.O. Box 10624
Baltimore, MD 21285-0624
Phone:  (800) 638-3775
Fax:  (410)  337-8539
E-mail:  custserv@brookespublishing.com
Web:  http://www.pbrookes.com/store/families
Info:  For those who support families, Brookes publishes practical and professional resources providing high-quality, sensitive services. And for family members who parent children with disabilities or have disabilities themselves, Brookes publishes practical sourcebooks with up-to-date information and advice.  Publications on topics including:  abuse and neglect; behavioral supports; cultural competence; emotional support; family, community and disability; family-centered services; foster care; home visiting; staff development; substance abuse; and other topics.

C

Caregiver's Handbook
Washington State Department of Social and Health Services, Aging and Adult Services
http://www.aasa.dshs.wa.gov/Library/caregiver.htm
Info:  A guide for family and other unpaid caregivers who care for an adult or senior with disabilities.  Topics covered include:  taking care of yourself; respect and dignity; caregiving tips for success; personal care; infection control; dealing with depression, excessive complaints, demanding behaviors and resistance; where to turn for outside help; choosing residential care:  when care at home is no longer possible and other topics. 

Center for Self-Determination - Publications
401 East Stadium Boulevard
Ann Arbor, MI 48104
Phone: 734-213-5220 
Fax: 734-213-5229
E-mail: tomnerney@earthlink.net
Web: http://www.self-determination.com/publications/index.htm 
Info: Newsletters and other on-line publications relating to self-determination.  Topics include:  Aging and Self-Determination; Personal Agents and Independent Brokers; Organizing a Movement; Creating Better Value in Long-Term Supports; Systems Change; Autonomy and Alternatives to Guardianship; Guardianship Reform; Self-Directed Support Corporations (Microboards); The Poverty of Human Services; Tools of Self-Determination; and other topics.

Center for the Study and Advancement of Disability Policy (CSADP)
1331 H Street, N.W.
Suite 301
Washington, D.C. 20005
Phone: (202) 783-5111
Fax: (202) 783-8250
E-mail: bobby@csadp.org 
Web: http://www.disabilitypolicycenter.org 
Info: The Center for the Study and Advancement of Disability Policy (CSADP) provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families. Information available relating to advocacy training materials, the Americans with Disabilities Act (ADA), disability policy in general, the Individuals with Disabilities Education Act (IDEA), Olmstead Supreme Court Case, Personal Assistance Services (PAS), the Rehabilitation Act, State Medicaid Buy-In Program and State Work Incentives, Temporary Assistance for Needy Families (TANF), Ticket to Work and Work Incentives Improvement Act, Vocational Rehabilitation, and Workforce Investment Act.

Coordinating Systems Serving Carers of Children and Adults with Developmental Disabilities (Download)
Rehabilitation Research and Training Center on Aging and Developmental Disabilities
Department of Disability and Human Development, (MC 626)
University of Illinois at Chicago
1640 West Roosevelt Road
Chicago, Illinois 60608-6904
Phone: (312)413-1520
Fax:  (312) 996-6942
TTY:  (312) 413-0453
Web:  http://www.uic.edu/orgs/rrtcamr/On Line Products/Coordinating Systems Serving Carers_files/Coordinating Systems.doc
Info:  Paper on organizing a National Family Caregiver Support Project for older caregivers of a family member with developmental disabilities. MS Word format.

D  

Disability Awareness Literature Resources
Web: http://www.gillettechildrens.org/default.cfm/PID=1.7.1.1 
Info:  List of books, CDs, videos, published articles, newsletters, upcoming conferences, etc, for  20 categories including brain injury, Down Syndrome, Cerebral Palsy, developmental disability, epilepsy, hearing impairment, vision impairment, physical disabilities, vision impairment,  issues of siblings and  other resources. Primary focus on children and adolescents with special health needs.

Disability is Natural
BraveHeart Press
P. O. Box 7245
Woodland Park, CO 80863
Phone:  (719) 687-0735
Toll-free:   (866) 948-2222
Fax: 1-719-687-8114
Web:  http://www.disabilityisnatural.com/book.htm
Info:When parents replace today’s conventional wisdom with the common sense values and creative thinking detailed in this book, all children with disabilities (regardless of age or type of disability) can live the life of their dreams! In this user-friendly book, you’ll learn how to:  Define your child by his assets, instead of his disability-related “problems,” and share this perspective with family, friends, professionals, and others;  replace conventional therapeutic interventions and other services from the system with natural supports and services in your own community; create “new and improved” partnerships with educators to ensure your child is educated in inclusive, age-appropriate regular education classes."