Annie E. Casey Foundation
701 St. Paul St. 
Baltimore, MD 21202
Phone:  (410) 547-6600
Fax: (410) 547-6624
Web:  http://www.aecf.org 
Info:  National children's advocacy organization.  The primary mission of the Foundation is to foster public policies, human service reforms, and community supports that more effectively meet the needs of today's vulnerable children and families.  Web site includes Kids Count online census database; publications and other resources.

The Arc of the United States
1010 Wayne Avenue, Suite 650
Silver Spring, MD 20910
Phone:  (301) 565-3842
Fax:  (301) 565-3843
E-mail:  info@thearc.org
Web:  http://www.thearc.org
Info:  National advocacy organization of and for people with mental retardation and related developmental disabilities and their families. It is devoted to promoting and improving supports and services for people with mental retardation and their families. The association also fosters research and education regarding the prevention of mental retardation in infants and young children.  Provides information and technical support to individuals, families and organizations.  Programs include Public Policy, Employment and Training and Sibling Support Project.

Arthur B. Schulz Foundation
620 Table Rock West Rd.
Alta, WY 83414
Phone: (307) 413-ABSF (2273)
Fax: (307) 353-ABSF (2273)
Email: info@absfoundation.org
Web: http://www.absfoundation.org
Info: The Arthur B. Schultz Foundation is dedicated to enhancing the quality of life on earth through support of wildlands conservation, disabled recreation and mobility, international micro-enterprise, and global understanding.

Augmentative and Alternative Communication Institute (AACI)
338 Meadville Street
Edinboro, PA 16412
Phone:  (814) 392-6625
e-mail:  khill@aacinstitute.org
Web:  http://www.aacinstitute.org
Info:  The AAC Institute, established in 2000, is a resource for all who are interested in enhancing the communication of people who rely on AAC (augmentative and alternative communication). Organized as a 501c3 not-for-profit charitable organization, the AAC Institute offers information and provides services worldwide. AAC Institute promotes the goal of AAC, the AAC Rules of Commitment, and evidence-based AAC clinical practice. This mission is accomplished through service delivery, research, information dissemination, and education.

Birth Defect Research for Children, Inc. (BDRC)
930 Woodcock Rd., Suite 225
Orlando, FL  32803
Phone:  (407) 895-0802
E-mail:  betty@birthdefects.org
Website:  http://www.birthdefects.org
Info:  Non-profit organization that provides parents  with information about birth defects and support services for their children. BDRC has a parent-matching program that links families who have children with similar birth defects. BDRC also sponsors the National Birth Defect Registry, a research project that studies associations between birth defects and exposures to environmental toxins (radiation, medication, alcohol, chemicals, etc.).  Information about fact sheets and issue-related bookstore both link from main page.  BRDC E-News, a monthly electronic newsletter available for members.

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The Center on Human Policy (CHP)
Syracuse University
805 South Crouse Avenue
Syracuse, NY 13244-2280
Phone:  (315) 443-3851
Toll-free:  1-800-894-0826
TTY:  (315) 443-4355
Fax:(315) 443-4338
Email: thechp@sued.syr.edu
Web:  http://soeweb.syr.edu/thechp
Info:  Syracuse University based organization, which devotes attention to promoting inclusive education, employment opportunities, and full community participation for people with disabilities; a policy, research, and advocacy efforts involved in the national movement to insure the rights of people with disabilities.  Their website is rich in information, some articles in French and Spanish.  On-line list of Publications and Resources.

Center for Self-Determination
401 East Stadium Boulevard
Ann Arbor, MI 48104
Phone: 734-213-5220 
Fax: 734-213-5229
E-mail: tomnerney@earthlink.net
Web: http://www.self-determination.com 
Info: Interactive working collaborative of individuals and organizations committed to the principles of self-determination. The purpose of the collaborative is to change the nature of the support and service system for individuals with disabilities, using the principles of self-determination to help all persons create the lives they want, connected to and with their communities.

Children's Defense Fund
25 E Street NW,
Washington, DC 20001
Phone:  (202) 628-8787
E-mail:  cdfinformation@chldrensdefense.org
Web:  http://www.childrensdefense.org
Info: National organization, which provides professional training, as well as parent training & community education on a wide variety of issues that affect children: childcare, education, health, mental health, adoption, violence prevention, child poverty, and more. Also essays, articles and reports on current issues and info on available low-cost or free health
insurance with state contacts.  Advocates for issues affecting children in low-income and other traditionally disenfranchised groups including:  head start, child health, child welfare and mental health, violence prevention and youth development, and family poverty issues.

Coalition for Disabled Musicians, Inc.
P.O. Box 1002M
Bay Shore, New York 11706
Phone:  (631) 586-0366
E-mail:  cdmnews@aol.com 
Web:  http://www.disabled-musicians.org
Info:  Voluntary, non-profit organization dedicated to enabling physically disabled musicians to pursue their musical dreams. CDM receives a few small grants and maintains its services through private and performance donations.  National referral service available to individuals and organizations, is dedicated to assisting physically disabled musicians in their musical endeavors at locations around the nation and in the world through communications media, including the World Wide Web.

Consortium for Citizens with Disabilities (CCD)
1331 H Street, NW, Suite 301
Washington, DC 20005
Phone:  (202) 783-2229
Fax:  (202) 783-8250
Email: Info@c-c-d.org 
Web:  http://www.c-c-d.org 
Info:  Coalition of approximately 100 national disability organizations working together to advocate for national public policy that ensures the self determination, independence, empowerment, integration and inclusion of children and adults with disabilities in all aspects of society.  Task forces advocate for issues in the areas of child abuse, developmental disabilities, education, employment and training, health, housing, long-term services and supports, prevention, rights, social security, TANF, technology and telecommunications, transportation, and work incentives implementation.

Mothers from Hell
P. O. Box 19
German Valley, IL 61039
Phone: (815) 362-5303
Fax: 303-374-3151
E-mail: beth@mothersfromhell2.org
Web:  http://www.mothersfromhell2.org
Info: A group of parent advocates who have children with various disabilities. Activities include getting medical, educational and community services, networking, giving each other moral support and hints on strategy and even socializing.

MUMS - National Parent to Parent Network
150 Custer Court
Green Bay, WI 54301
Phone:  (920) 336-5333
Toll-free: 1-877-336-5333 (Parents only please)
Fax: (920) 339-0995
E-mail:  mums@netnet.net
Web:  http://www.netnet.net/mums
Info:  International parent matching service; MUMS matches parents whose children have disabilities (including very rare disorders), using a database of over 17,000 families from 52 countries. MUMS also refers to local support groups. Newsletter for members.  MUMS Data Base List of Disorders on-line.

The Museum of disABILITY HISTORY
People Inc.
1219 North Forest Road
P.O. Box 9033
Williamsville, NY 14231-9033
Phone: (716) 817-7477
Fax: (716) 817-7234
E-mail: dplatt@people-inc.org
Web: http://www.people-inc.org/museum
Info: The Museum of disABILITY History is dedicated to the collection, preservation and display of artifacts pertaining to the history of people with disabilities. Located in Buffalo, New York, and on the World Wide Web, the Museum offers educational exhibits and activities that expand community awareness.

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National Association of Governor's Committees on People with Disabilities (NAGC)
PO Box 826880, MIC 88
722 Capitol Mall, Room W1077
Sacramento, CA 94280-0001
Phone: (916) 654-1764
TTY: (916) 654-9820
Fax: (916) 653-2467
E-mail: cbaird@edd.ca.gov
Web:  http://www.nagcpd.com/index.html
Info:  The purpose of the NAGC is to provide a national organizational forum to facilitate a unified approach to important policy and program issues on disability. Working at the community, state and national levels, it is a voluntary partnership of business, government, education, labor and people with disabilities.

National Association of Protection and Advocacy Systems, Inc. (NAPAS)
900 Second Street, NE, Suite 211
Washington, D.C. 20002
Phone: (202) 408-9514
Fax: 202-408-9520
E-mail: napas@earthlink.net
Web:  http://www.protectionandadvocacy.com
Info:  NAPAS is a non-profit membership organization for the federally mandated nationwide network of disability rights agencies, protection & advocacy systems (P&As), and client assistance programs (CAPs). It was created to: facilitate coordination of its members; represent the needs of members to federal agencies and Congress and provide technical assistance and training to member agencies which enhance their effectiveness on the state and local level.  NAPAS was created to: facilitate coordination of its members; represent the needs of members before federal agencies and Congress; and provide technical assistance and training to member agencies, which enhance their effectiveness on the state and local level.

National Center for Learning Disabilities (NCLD)
381 Park Avenue South
Suite 1401
New York, NY 10016
Phone:  (212) 545-7510
Toll-free: (888) 575-7373
Fax:  (212) 545-9665
Web:  http://www.ncld.org 
Info:   NCLD reaches out to millions of individuals each year--including individuals with LD and their families, the media, researchers, educators, and policy makers--through special campaigns and publications, and in response to thousands of requests for information and referrals. NCLD provides information on living with LD throughout the lifespan, and promotes understanding of how society can fully capitalize on the abilities of people with LD through early identification and treatment.

National Center for Parent Directed Family Resource Centers (PDFRC)
3041 Olcott Street,
Santa Clara, CA 95054
Phone:  (408) 727-5775
Fax: (408) 727-0182
E-mail:  general@php.com
Web:  http://www.php.com
Info:  Organization provides training and technical assistance to parents and professionals who are interested in developing a parent-directed family resource center (PDFRC). PDFRCs provide emotional and informational support to parents who have a child with special needs.

National Coalition on Self-Determination
232 Marsalla Drive
Folsom, CA 95630
Phone: (916) 987-1682
Fax: 775-898-2716
E-mail: thenconsd@aol.com
Web: http://oaksgroup.org/nconsd 
Info: a national partnership of people with disabilities, parents, and family members who work to promote federal policies that support the four principles of Self-Determination - freedom, authority, support, and responsibility and the values of the Community Imperative - a declaration asserting the fundamental human right of all people, regardless of the severity of their disabilities, to community living.

National Council on Independent Living (NCIL)
1916 Wilson Boulevard
Suite 209
Arlington, VA 22201
Phone: (703) 525-3406
TTY: (703) 525-4153
Fax: (703) 525-3409
E-mail: ncil@ncil.org
Web:  http://www.ncil.org
Info:  A membership organization that advances the independent living philosophy and advocates for the human rights of, and services for, people with disabilities.  Check the website for info on various efforts and activities of this grassroots group.

National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
Phone:  (301) 942-6430
Toll Free:  (800) 896-3650
Fax:  (301) 942-2302
E-mail: info@thefamilycaregiver.org
Web:  http://www.nfcacares.org
Info:  The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.  The NFCA 9s committed to improving the overall quality of life of caregiving families and minimizing the disparities between family caregivers and non-caregivers.

National Information Center for Children & Youth with Disabilities (NICHCY) - Publications
P.O. Box 1492
Washington, DC 20013-1492
Phone/TTY:  (202) 884-8200
Toll-free/TTY:  (800)-695-0285
Fax:  (202) 884-8441
E-mail:  http://www.nichcy.org/catalog.htm 
Info:   National information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22). Project of the Academy for Educational Development, operated through Cooperative Agreement with the Office of Special Education Programs, U.S. Department of Education.  Services include:  personal responses to your specific questions;  NICHCY Publications (most can be printed off the Internet);  referrals to other organizations and sources of help;  information searches of NICHCY Databases and Library.  Materials are also available in Spanish, on disk, and as camera-ready originals.

National Organization on Disability (NOD)
910 Sixteenth Street, N.W.
Suite 600
Washington, DC 20006
Phone: (202) 293-5960
Fax: (202) 293-7999
TTY: (202) 293-5968
Email: ability@nod.org 
Web: http://www.nod.org/ 
Info: The mission of the National Organization on Disability (N.O.D.) is to expand the participation and contribution of America’s 54 million men, women and children with disabilities in all aspects of life.   Focuses on closing the participation gaps in community involvement, economic participation, and access to independence.

Research and Training Center on Community Living
204 Pattee Hall
150 Pillsbury Drive S.E.
Minneapolis, MN 55455
Phone: (612) 625-1566
Fax: (612) 625-6619
E-mail: weste050@umn.edu 
Web:  http://rtc.umn.edu/main
Info:  The Research and Training Center on Community Living provides research, evaluation, training, technical assistance and dissemination to support the aspirations of persons with developmental disabilities to live full, productive and integrated lives in their communities. Information and publications pertaining to residential supports/Medicaid; disability statistics; self-advocacy/self-determination; person centered practices; direct support professionals/workforce development; and recreation/leisure.

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SIBSHOPS - Sibling Support Project
6512 23rd Avenue, NW
Suite 213, Seattle, WA 98117
Phone: (206) 297-6368
Web:  http://www.seattlechildrens.org/sibsupp/sibshopdirectory_map.htm
Info:  Children’s Sibshops are lively, pedal-to-the-metal, award-winning celebrations of the many contributions made by brothers and sisters of kids with special needs. Sibshops acknowledge that being the brother or sister of a person with special needs is for some a good thing, others a not-so-good thing, and for many, somewhere in between. They reflect a belief that brothers and sisters have much to offer one another--if they are given a chance.

SOFT USA - Support Organization for Trisomy 18, 13 and Related Disorders
2982 South Union Street
Rochester, NY 14624
Phone: (716) 594-4621
Toll-free:  (800) 716-7638
Web:  http://www.trisomy.org
Info:  a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Support is provided during prenatal diagnosis, the child's life and after the child's passing.

Speaking for Ourselves
502 W. Germantown Pike-Suite 550
Plymouth Meeting, PA 19462
Telephone: 610-825-4592
FAX 610-825-4595
Email: info@speaking.org
Web:  http://www.speaking.org 
Info:  Self-advocacy organization for people with disabilities whose goals are to teach the public about the needs and wishes and potential of people with disabilities; to speak out on important issues and support each other through sharing, leadership development and helping and encouraging each other.

Support Coalition International
PO Box 11284
Eugene, OR 97440-3484
Phone: (541) 345-9106
Toll-free:  1-877-MADPRIDE (for joining and ordering)
Fax: (541) 345-3737
E-mail:  office@MindFreedom.org
Web:  http://www.mindfreedom.org
Info:  Grassroots organization working for the rights of people labeled with mental disabilities - "psychiatric survivors" (term used by individuals who identify themselves as having experienced human rights violations in the mental health system).  Check website for current campaigns and actions.

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TASH
29 W. Susquehanna Ave., Suite 210
Baltimore, MD  21204
Phone:  (410) 828-8274
Fax: (410) 828-6706
Web:  http://www.tash.org/
Info:  Annual conferences held, including topics such as critical legal issues for people with disabilities.  The members of TASH are people with disabilities and advocates of people who have traditionally been denied access to education, work, and community living.  Spanish speaker on staff.  The TASH Newsletter and Journal provide information on current trends and issues in the field of disabilities.

Through the Looking Glass
2198 Sixth Street, Suite 100
Berkeley, CA 94710-2204
Phone:   (510) 848-1112
Toll-free: 1-800-644-2666
TTY: 1-800-804-1616
Fax: (510) 848-4445
E-mail:  TLG@lookingglass.org
Web:  http://www.lookingglass.org
Info:  Research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.  Resources and information for parents with disabilities. 

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UN Enable - The United Nations Focal Point on People with Disabilities
United Nations Global Programme on Disability
Two United Nations Plaza, DC2-1372
New York, NY 10017
Fax: (212) 963-0111
E-mail: enable@un.org 
Web:  http://www.un.org/esa/socdev/enable/
Info: The focal point within the United Nations system on matters relating to disability. It is also the focal point for activities related to global social development, to youth, older persons and the family. Prepares publications and acts as a clearing-house for information on disability issues; promotes national, regional and international programmes and activities; provides support to Governments and non-governmental organizations; gives substantial support to technical co-operation projects and activities.

United People with Disabilities
5910 77th Street, East
Palmetto, FL 34221
Phone: (941) 723-0389
E-mail: upwd@upwd.net
Web:  http://www.upwd.net
Info:  UPWD is an umbrella organization for people with disabilities. Goals include: securing benefits such as life, health, automobile and disability insurance, etc. for members; acquiring discounts on products and services; educating the public; informing government policy makers regarding issues affecting people with disabilities; informing members of current news affecting people with disabilities; supporting the Americans with Disabilities Act and the Rehabilitation Act; helping people with disabilities fulfill their aspirations and helping people with disabilities take their rightful place in society.

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World Congress and Exposition on Disabilities Foundation for Education
210 Route 4 East, suite 304
Paramus, NJ 07652
Phone:  (201) 226-1446 ext 120
Toll-free:  (877) 923-3976 ext 120
Fax:  (201-226-1236
E-mail:  sarahl@wcdfoundation.org
Info:  International organization supporting people with disabilities and their families.  Monthly newsletter, scholarships, and other information.

World Institute on Disability (WID)
510 16th Street, Suite 100
Oakland, California 94612
Phone:  (510) 763-4100
TTY:  (510) 208-9496
Fax:  (510) 763-4109
E-mail:  webpoobah@wid.org
Web:  http://www.wid.org
Info:  Non-profit, public policy center dedicated to promoting independence and full societal inclusion of people with disabilities.  Ongoing programs include:  Division on Employment Policy and Economic Development (EPED); Health Access and Long-term Services Division (HALTS); International Division;  Proyecto Visión: National Technical Assistance Center to Increase Employment of Latinos and Hispanics with Disabilities; Technology Policy; Training and Public Education and other initiatives.  List of current events and on-line newsletter.

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SUPPORT: About | Organizations | Publications | On-line Resources

Can't find the answer to your question here? Call the Arc of King County at: (206) 364-6337 or toll-free (in Washington only) 1-877-964-0600 8:30am - 4:30pm Monday - Friday You may also use the online form or e-mail connections@arcofkingcounty.org

To request the addition/correction of a resource listing, to have your event included in the Community Calendar or Recreation calendar, or for other questions:  e-mail Jeff Welch at jwelch@arcofkingcounty.org or phone (206) 349-6182 .

Listings in Community Connections and events on the Community Calendar come from a variety of host organizations and individuals.  For information about events, please contact the event sponsor.  The distribution of information  via Community Connections does not imply sponsorship or endorsement of any specific organization or event by The Arc of King County, the King County Developmental Disabilities Division, or affiliated entities.

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Community Connections is made possible with support from the King County Developmental Disabilities Division and is hosted by The Arc of King County.

This page last updated:  Sunday, November 25, 2007