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American
Academy of Child and Adolescent Psychiatry (AACAP)
3615 Wisconsin Ave. N.W.
Washington, D.C. 20016-3007
Phone: (202) 966-7300
Fax: (202) 966-2891
Web: http://www.aacap.org/index.htm
Info: Membership based organization, composed of over 6,500 child and adolescent psychiatrists and other interested physicians.
The AACAP widely distributes information in a effort to promote an understanding of mental illnesses and remove the stigma associated with them; advance efforts in prevention of mental illnesses, and assure proper treatment and access to services for children and adolescents.
American
Music Therapy Association (AMTA)
8455 Colesville Road, Suite 1000
Silver Spring, Maryland 20910, USA
Phone: (301) 589-3300
Fax: (301) 589-5175
E-mail: info@musictherapy.org
Web: http://www.musictherapy.org
Info: Founded in 1998, AMTA's purpose is the progressive development of the therapeutic use of music in rehabilitation, special education, and community settings. Predecessors to the American Music Therapy Association included the National Association for Music Therapy founded in 1950 and the American Association for Music Therapy founded in 1971. AMTA is committed to the advancement of education, training, professional standards, credentials, and research in support of the music therapy profession. Products, publications, and referral to locally
credentialed music therapists provided.
American
Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD 20852
Toll-free/TTY: 1-800-638-8255
E-mail: actioncenter@asha.org
Web: http://www.asha.org
Info: Professional, scientific, and credentialing association for more
than 103,000 audiologists, speech-language pathologists, and speech, language,
and hearing scientists. ASHA's mission is to ensure that all people with
speech, language, and hearing disorders have access to quality services to help
them communicate more effectively. Information and referral, research and annual
convention.
Bazelon
Center for Mental Health Law
1101 15th Street, NW, Suite 1212
Washington, DC 20005-5002
TTY: (202) 467-4232
Fax: (202) 223-0409
E-mail: webmaster@bazelon.org
Web: http://www.bazelon.org
Info: Nonprofit legal advocacy organization provides technical support and
co-counsel to selected lawsuits with private lawyers, legal services programs,
ACLU chapters and state protection and advocacy systems. Works with with
local, regional and national advocacy and consumer organizations to reform
public systems and promote consumer participation in the design and operation of
service programs. Publishes handbooks, manuals and reports explaining key legal
and policy issues in everyday terms. Web site lists current alerts and
legislative updates regarding mental health laws, and links to a bookstore with
on-line catalog (some in Spanish).
Family
Voices
3411 Candelaria NE, Suite M
Albuquerque, NM 87107
Phone: (505) 872-4774
Toll-Free: (888) 835-5669
Fax: (505) 872-4780
E-mail: kidshealth@familyvoices.org
Web: http://www.familyvoices.org
Info: National, grassroots clearinghouse for information and education
concerning the health care of children with special health needs. Assistance in
advocacy for children on personal and national level, especially with regard to
healthcare issues (accurate diagnosis and routine treatment and monitoring;
life-sustaining technology, treatment, and medicines throughout their lives).
Information on how to advocate for your child, bi-monthly newsletter for
members.
Give
Kids the World
210 S. Bass Road
Kissimmee, FL 34746
Phone: (407) 396-1114
Toll-free: (800) 995-KIDS (for referral to the wish-granting organization
in your community)
Web: http://www.gktw.org
Info: Non-profit organization (similar to Make-A-Wish Foundation) which
offers a 6 day vacation for children with life-threatening illnesses and their
families from around the world. Cost-free visit to the Central Florida
attractions and the magic of the Give Kids The World Village.
Health Insurance
Association of America
1201 F Street, NW, Suite 500
Washington, D.C. 20004-1204 |
Phone: (202) 824.1600
Web: http://www.hiaa.org
Info: Organization of America¹s health insurers. You can request info on
various types of insurance: health insurance, managed care, long-term care,
disability, and a special guide for business owners. Also directories to
insurers who provide long-term care, disability, and dental insurance.
Kaiser Family
Foundation
2400 Sand Hill Road
Menlo Park, CA 94025
Phone: (650) 854-9400
Fax: (650) 854-4800
E-mail: info@kff.org
Web: http://www.kff.org
Info: The Henry J. Kaiser Family Foundation is a non-profit, private
operating foundation focusing on the major health care issues facing the nation.
KFF develops and runs its own research and communications programs, often in
partnership with outside organizations. The Foundation contracts with a wide
range of outside individuals and organizations through its programs. Through
policy research and communications programs, works to provide reliable
information in a health system in which the issues are increasingly complex.
Medicare
Rights Center
1460 Broadway, 17th Floor
New York, NY 10036
Phone: (212) 869-3850
Phone: (206) 654-1833 (Washington State information)
Toll-free: (800) 397-4422
Fax: (212) 869-3532
E-mail: info@medicarerights.org
Web: http://www.medicarerights.org
Info: The Medicare Rights Center (MRC) is a national, not-for-profit, non-governmental organization that helps ensure that older adults and people with disabilities get good affordable health care. MRC provides telephone hotline services to individuals who need answers to Medicare questions or help securing coverage and getting the health care they need. Education department works to teach people with Medicare and those who counsel them--health care providers, social service workers, family members, and others--about Medicare benefits and rights. Through public policy efforts, MRC brings the consumer voice to the national debate on Medicare reform. And through communications efforts, MRC works closely with local and national media outlets to ensure public awareness and understanding of Medicare issues.
National
Association of County Behavioral Health Directors (NACBHD)
1555 Connecticut Ave. NW
Suite 200
Washington, DC 20036
Phone: (202) 234-7543
Fax: (202) 462-9043
E-mail: lauren@nacbhd.org
Web: http://www.nacbhd.org/
Info: NACBHD is a non-profit membership organization comprised of county/local behavioral health authorities with responsibility for the planning and delivery of mental health, developmental disabilities and substance abuse services and the state associations that represent their interests. The mission of the National Association of County Behavioral Health Directors is to promote excellence in the delivery of county/local behavioral health services. NACBHD is committed to the well being of consumers and families in every community, the care and protection of the most vulnerable populations and strengthening of the public behavioral health system.
National
Association for the Dually Diagnosed (NADD)
132 Fair Street
Kingston, NY 12401
Phone: (800)331-5362
Fax: (845)331-4569
E-mail: info@thenadd.org
Web: http://www.thenadd.org
Info: NADD is a not-for-profit membership association established for
professionals, care providers and families to promote understanding of and
services for individuals who have developmental disabilities and mental health
needs. The mission of NADD is to advance mental wellness for persons with
developmental disabilities through the promotion of excellence in mental health
care.
National
Center on Birth Defects and Developmental Disabilities
4770 Buford Hwy, NE
Atlanta, GA 30341
Phone: (770) 488-7150
Web: http://www.cdc.gov/ncbddd/
Info: The National Center on Birth Defects and Developmental Disabilities
(NCBDDD) at the Centers for Disease Control and Prevention (CDC) seeks to
promote optimal fetal, infant, and child development; prevent birth defects and
childhood developmental disabilities; and enhance the quality of life and
prevent secondary conditions among children, adolescents, and adults who are
living with a disability.
National
Center of Medical Home Initiatives for Children with Special Needs
141 Northwest Point Blvd
Elk Grove Village, IL 60007
Phone: (847) 434-4000
Fax: (847) 228-7035
E-mail: medical_home@aap.org
Web: http://www.medicalhomeinfo.org/about
Info: The mission of the National Center is to work in cooperation with federal agencies, particularly the Maternal and Child Health Bureau (MCHB), to ensure that children with special needs have access to a medical home. The National Center provides support to physicians, families, and other medical and non-medical providers who care for children with special needs.
Through the National Center, physicians, parents, administrators, and other health care professionals have access to educational, resource, and advocacy materials, guidelines for care, evaluation tools, and technical assistance.
National
Institute of CHILD HEALTH and Human Development (NICHD)
Information Resource Center
P.O. Box 3006
Rockville, MD 20847
Toll-Free: (800) 370-2943
Fax: (301) 984-1473
E-mail: NICHDClearinghouse@mail.nih.gov
Web: http://www.nichd.nih.gov
The National Institute of Child Health and Human Development (NICHD)
Information Resource Center provides information on health issues and
publications related to NICHD research. The NICHD supports and conducts research
on the reproductive, neurobiologic, developmental, and behavioral processes
related to the health of children, adults, families, and populations. The NICHD
also sponsors the “Back to Sleep” Campaign, designed to educate families and
caregivers about putting healthy babies on their backs to sleep to reduce the
risk of sudden infant death syndrome (SIDS), and the “Milk Matters” calcium
education campaign, designed to teach parents, children, and health
professionals about the importance of calcium consumption for children and
teens. The Information Resource Center offers trained Information Specialists
with access to information and referral services on topics related to the
mission of NICHD. Information Specialists are available to respond to inquiries
Monday–Friday, 8:30 a.m.–5:00 p.m. (eastern time).
National
Organization for Rare Disorders, Inc (NORD)
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100
Toll-free: (800) 999-6673 (voice mail only)
TTY: (203) 797-9590
Fax: (203)798-2291
E-mail: orphan@rarediseases.org
Web: http://www.rarediseases.org/
Info: NORD is the federation of voluntary health organizations dedicated
to helping people with rare "orphan" diseases and assisting the
organizations that serve them. NORD is committed to the identification,
treatment, and cure of rare disorders through programs of education, advocacy,
research and service. Rare Disease database (over 1,100 disorders)
on-line. Also on line: database of support groups, database of
"orphan" drugs, and info on Medication Assistance Programs.
National
Technical Assistance Center for State Mental Health Planning
66 Canal Center Plaza, Suite 302
Alexandria, VA 22314
Phone: (703) 739-9333
FAX: (703) 548-9517
E-mail: ntac@nasmhpd.org
Web: http://www.nasmhpd.org/ntac/resources.html
Info: NTAC delivers customized, on-site technical assistance to State
Mental Health Agencies, State Mental Health Planning and Advisory Councils,
consumers, families and other organizations on issues related to mental health
planning, service delivery and evaluation such as managed care, housing, system
financing, performance measures and employment; plans and hosts targeted
technical assistance and training events including regional and national
conferences and workshops, training institutes, focus groups and other consensus
development activities; publishes a wide range of materials designed to help
State Mental Health Agencies and other NTAC constituents apply the knowledge
gained through research, evaluation and practice to mental health service
settings.
Office
of Minority Health
P.O. Box 37337
Washington, D.C. 20013-7337
Toll-free: (800) 444-6472
TTY: (301) 230-7199
Fax: (301) 230-7198
Web: http://www.omhrc.gov
Info: OMH advises the Secretary and the Office of Public Health and
Science (OPHS) on public health issues affecting American Indians and Alaska
Natives, Asian Americans, Native Hawaiians and Other Pacific Islanders,
Blacks/African Americans, and Hispanics/Latinos. The mission of OMH is to
improve the health of racial and ethnic populations through the development of
effective health policies and programs that help to eliminate disparities in
health.
Rehabilitation
Research and Training Center on Aging with Developmental Disabilities (RRTCADD)
Department of Disability and Human Development, (MC 626)
University of Illinois at Chicago
1640 West Roosevelt Road
Chicago, Illinois 60608-6904
Phone: (312)413-1520
Fax: (312) 996-6942
TTY: (312) 413-0453
Web: http://www.uic.edu/orgs/rrtcamr
Info: National resource for
researchers, planners, providers, self-advocates, families and students in the
field of aging and developmental disabilities. Web site includes articles
on a variety of topics relating to aging and developmental disabilities,
including: Grandparents raising children with developmental disabilities;
Women with Developmental Disabilities: Health and Aging; dementia and
developmental disabilities; supporting older family caregivers of individuals
with developmental disabilities, and other aging-related information and
resources.
Research
and Training Center on Family Support and Children's Mental Health
PO Box 751
Portland, OR 97207-0751
Phone: 503.725.4040
Fax: 503.725.4180
E-mail: rtcpubs@pdx.edu
Web: http://www.rtc.pdx.edu/
Info: The Research and Training Center on Family Support and Children's
Mental Health was established in 1984 at Portland State University, Portland,
Oregon with funding from the National Institute on Disability and Rehabilitation
Research (NIDRR), U.S. Department of Education, and the Center for Mental Health
Services, Substance Abuse and Mental Health Services Administration, U.S.
Department of Health and Human Services. The Center is dedicated to promoting
effective community-based, culturally competent, family-centered services for
families and their children who are, or may be affected by mental, emotional or
behavioral disorders. This goal is accomplished through collaborative research
partnerships with family members, service providers, policy makers, and other
concerned persons.
SAMHSA's
National Mental Health Information Center
P.O. Box 42490
Washington, DC 20015
Phone: (800) 789-2647
TTY: (866) 889-2647
Fax: (301) 984-8796
Web: http://www.mentalhealth.samhsa.gov
Info: The National Mental Health Information Center was developed for users of mental health services and their families, the general public, policy makers, providers, and the media. Information Center staff members are skilled at listening and responding to questions from the public and professionals. The staff quickly directs callers to Federal, State, and local organizations dedicated to treating and preventing mental illness. The Information Center also has information on Federal grants, conferences, and other events.
Screening
for Mental Health, Inc.
One Washington Street, suite 304
Wellesley Hills, MA 02481
Phone: (781) 239-0071
Fax: (781) 431- 7447
E-mail: info@mentalhealthscreening.org
Web: http://www.mentalhealthscreening.org
Info: Non-profit organization developed to coordinate nationwide mental
health screening programs and to ensure cooperation, professionalism, and
accountability in mental illness screenings. Screening for Mental Health
was inspired by the success of National Depression Screening Day (NDSD), the
community outreach and education program created in 1991, with the support of
the American Psychiatric Association.
Su Familia - National Hispanic
Family Health Helpline
United States Department of Health and Human Services (HHS)
Toll-Free: (866) SU-FAMILIA (783-2645)
Info: Su Familia will help Hispanic families get basic health information
to help them prevent and manage chronic conditions, and refer them to local
health providers and federally supported programs including the State Children's
Health Insurance Program (SCHIP).
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This page last updated: Sunday, November 25, 2007